Hi close friends, I hope you all have been very well and that you are kicking off summer time in the very best way attainable!
So several of you have reached out to request how Dominic is carrying out and whilst I share a speedy picture on Instagram stories once in a while, I required to pop in swiftly to give you an update.
Because I previous wrote, Dominic has concluded cycles two and 3 of chemotherapy. Equally created him sick one particular working day of the treatment method but with a tweak of the nausea meds, he was sensation far better.
His new favourite in-hospital action? Audio remedy! He receives such a major kick out of taking part in the instruments 😁
He is also Really into every day bingo 😍
On the very last day of his second cycle, he experienced the option to tour the helicopter pad on the clinic roof, which he Cherished. The see was remarkable and we figured out plenty of enjoyment specifics (mother loves a good discipline trip, ha)!
Whilst dwelling, he proceeds to participate in and very much enjoys life as normal, like plenty of outside the house time now that it is great out!
Among rounds two and 3 of chemotherapy, we traveled to New York for Dominic to be seen at Memorial Sloan Kettering, where they have a team of pediatric oncologists who specialize in neuroblastoma.
He is becoming handled less than their guidance, so considerably acquiring all of his chemotherapy below in Pittsburgh, but we will travel there for his tumor removal medical procedures.
We both experienced our to start with Uber experience, experienced Shake Shack for the to start with time (SO Very good), and Dominic experienced his very first continue to be in a hotel. A productive journey, but there is definitely no position like residence!
Our New Regular
We are getting pretty made use of to the indicators of reduced hemoglobin (two days in a row of having additional consume breaks than common whilst actively playing outdoors? We guessed he was heading to want blood when he went to his clinic appointment the up coming working day and, absolutely sure more than enough, he did) and reduced platelets (extra bruising). He has had several transfusions of the two because starting this journey, so a good major thank you to anyone who has ever donated blood, as we are now so significantly extra acutely knowledgeable of the worth of this selfless act.
Hemoglobin, platelets, white cell counts, neutrophils, and ANC quantities are now just frequent dialogue here.
We have all type of settled into our new program of solutions, visits to the healthcare facility, controlling medications, line flushing, and many others.
The biggest hurdle due to the fact this final cycle of chemotherapy is that we have had to give Dominic day by day pictures (vs the a single-time photographs following the to start with and second rounds) and it is the absolute worst. He has generally hated photographs and he just dreads them, I get nervous, and it is just a total SCENE. The day by day pictures have been utilized for the reason that of his future stem cell harvest, to assure his counts were being robust (see down below).
This coming week, Dominic will have a stem cell harvest, where by they will insert a temporary line to extract stem cells (which will then be saved) should he need them in any potential all through therapy down the highway. It is our hope that he would not, but they will be there if he does.
The up coming substantial stage is in two weeks when he will have his tumor elimination surgical procedures. Next the surgical procedure, he will have a further round of chemotherapy and then a couple of weeks right after that, a battery of exams and scans to see where we stand with the ailment.
You should keep on to pray that the most cancers is responding to therapy, that the surgeons are equipped to clear away the tumor securely and properly, and that he has a rather easy restoration.
Enjoyable at Home…
A handful of more shots of the young children from current weeks ❤️
Wishing you all a fun and secure commence to your summer time! ☀️❤️